Slept like crap last night, could not shut my mind down.
We met up with our friends for ice-cream last night, it was great.
Shawn got a ton of compliments on his bike, and not just from little boys "OOOOOO cool bike mister."
These were guys who new their stuff so I was happy for him. Happy that even with his oxygen cannula hanging off his face he could be one of the guys, and a cool one to boot.
So my mind is not focusing well. I have so many things to start or finish, so many cards to write, telephone calls to make, appointments to be scheduled, I don't ever feel like I get anything accomplished.
I need to make smart decisions for Shawn. I can't fuck this up. He's depending on me.
Trying to sort through research and decide on a plan for him, treatments, evals etc. I wish he was as interested in this as I am.
He just wants to breathe.
Rest in Peace Aunt Marybeth
1 year ago