Good news first. Shawn had a bronch and biopsy last week and yay his biopsy came back negative for rejection. Whew huge sigh of relief.
However there was some junk in there which was cultured and something suspicious showed up. Now I don't have the details just what Shawn relayed to me, they called him and are having him come in for some blood work because they are looking for a "mold". He is scheduled for the repair of two large hernias next week and I'm not sure if that is still on or not. I guess we'll find out tomorrow. Ack. Oh to have a boring month without a hospitalization.
He looks great, feels pretty darn good, nothing is stopping him but let's hope and pray that this "mold" or whatever the hell they find is easily nixed!
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It's probably aspergillus, which is a fairly common mold in CFers and post-tx CF patients. It's not normally a huge deal (in pre-tx CFers they often don't even treat it), but some people can develop ABPA, which is an allergic reaction. I would imagine they will treat it post-tx with an anti-fungal, probably either oral vfend (a pill) or a chalky tasting liquid called noxa-something. I've cultured it before, and they treated it with vfend and it went away entirely, even in my gross CF lungs.
Good luck! Hope you and Shawn get your boring month soon!
Fingers crossed for you guys Tina!!! Sending good vibes your way. <3 Kim
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